does cystic fibrosis affect both respiratory and digestive system? can it affect only one or the other?my daughter had a positive sweat chloride test. the doctor said she has cystic fibrosis which is usually a problem with the respiratory system. it is affecting her digestive system but she has never had ANY respiratory problems. besides the digestive problems she is healthy, not to big, not to small. and she rarely gets sick. im just wondering if it will start to affect her respiratory system as well.
Posted by drugsi
unfortunately cystic fibroses is a syndrom which affect all body secretion of all glands {eg : salivary glands ,pancrease ,mucus glands } ,so i am sorry to say that ur daughter's respiratory sys may also suffer from infections that may lead to bronchiectasis .
Posted by jacksgurl
yes eventually cystic fibrosis will affect her respiratory system. My daughter has cf as well and although she has not been sick yet the doctors said it will affect it. Im sorry to hear about your daughter though I am in the same situation.
Posted by suz
CF affects the respiratory, digestive and reproductive systems. Girls usually can carry a baby but may have a hard time. 92% of boys with CF are sterile. Respiratory varies but it is always a factor. About 85% of people with CF have digestive issues. I encourage you to find a CF care center close to you and get educated www.cff.org.
Posted by Savannah
The most common forms of CF will affect respiratory, digestive and other secrectory organs (glands), but there are many variations. Suz has given you a good answer. CF affects all cells that secrete. The thing is, it will affect digestive cells more in some people and respiratory cells more in others. I have known people who reach adulthood with a positive diagnosis for CF who never have any respiratory problems at all. It is not "given" that all people with CF will ahve respiratory problems. I have known some who have needed multiple sinus surgeries, but never had respiratory problems. I have known some who have had nothing BUT respiratory problems. You have to keep on top of your daughter's health by having regular evaluations at a CF Center where they will do pulmonary functions tests on a regular basis to see if she is starting to develop any lung problems so that they can be treated immediately.
Posted by sagatale
Cystic Fibrosis affects people differently. It doesn't always matter which of the "genes" one has. My son has two Delta 508's which used to be thought of as the most lung involved. He is 18 y/o with only a lot sinus problems and a few GI issues - never a lung issue yet. My husband has CF and has a small amount of GI issues, pretty much amounts to he can eat whatever he wants without weight gain.
It typically affects the lung, GI, sinus area but it varies so she will be treated when needed for the symptoms she has. Good luck and don't read and believe everything you may find on CF. Look at your daughters medical situation and stay focused on her care not the "general" and outdated beliefs you may hear about. I once told a friend I vew CF like pregancy, we each have different symptons and experiences for the same condition.
You might join a group called CYSTIC-L. It's a site dedicated to the exchange of information and support specific to cystic fibrosis families and friends. Since members include people with CF you can find "real" information.
Cystic-L: http://cystic-l.org/
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